Well, we thought Connor was going to leave yesterday or today, but that is not the case. While all of his GI issues seem to have resolved themselves we are now back to his arm (the reason he was originally brought here). They did another ultrasound Monday morning and saw that Connor has a small blood clot in the upper part of his arm. The good thing is that the clot is not restricting his blood flow at a level that causes much concern. When he was first admitted here they didn't find the clot, but are very certain it was there and that the tech doing the ultrasound simply missed it. A positive from this is that when they did do the initial ultrasound they tested his blood flow rate and the rate yesterday was better than on the first ultrasound. That fact lends validation to the idea that it is getting better.
The severity of the clot seems to be fairly low to moderate, but he will have to be given a shot in his thigh twice a day for 6 weeks. Dr. Arnold does not seem to think that he has any sort of clotting disorder and that the clot was likely formed by whatever event happened inside Amy that may compromised his arm.
Last night Connor got his first shot by the nurse and this morning Amy administered the shot. She did very well, but was nervous to stick her little man with a needle. Amy and I both will have to be proficient in doing this before we leave as we will administer the shots from home. They are waiting for some results to learn if they are giving him the correct dosage. Every kid is different in how much they require.
The other issue is his the lack of movement in his left arm. The great thing is that it has done nothing but gotten better since we have been here. The doctors seem think he could have a mild case of Erb's Palsy. If that is the case it will be something that usually resolves itself over time. However, the neurology team just came by and assessed him. They have ordered an MRI to be done on Connor just to make certain they can rule out any other type of neurological problems that may have been caused when he was compromised in utero. They are pretty confident that the tests will come back negative, but they just want to be sure there is/was not another blood clot in his brain. Our doctor who has been very upfront and honest seems very positive that nothing severe is going on, but we won't know until after the MRI.
A couple of things need to happen before we can leave. 1. We need to get the results from the MRI. 2. The doctors need to dial in the correct amount of blood thinner they will put him on. 3. Amy and I need to become proficient in administering his shot.
Amy has been such a strong woman and I am so lucky to have her. Today she is struggling and has been sad as all she wants is to take her baby home with us and for him to be okay. Please continue to pray for our little man, that we continue to draw strength from Christ, and that the doctors are able to continue to treat any issues that arise. Please keep praying for Connor's buddy and neighbor Mercer and his family.
Thanks again for sending prayers, positive energy, and thoughts our way. We can feel the spirit of The Lord working and can feel all of you in our hearts.
Love,
Anthony, Amy, and Connor.
Sent from my iPad
Sent from my iPad
Mary-Ann | October 9, 2012 at 11:53 AM
My prayers are with you all!!! Will have my church prayer warriors praying as well! Thank you for all your updates! Stay strong and keep the faith. God is in control!
Abi Spencer | October 10, 2012 at 1:52 PM
We are praying for the Hilbers family from Tulsa! Believing for a complete good report for Connor. And praying for continued peace and comfort for you and Amy. Thank you so much for the updates!